Maybe...

Maybe, you just want to play hookie and go play with your Mama and your blue-eyed babe
Maybe, you really don't like to break the rules so you really take a vacation day instead of playing hookie
(but hookie sounds cooler)
AND
Maybe you surprise the pants off of your favorite 10 year old and take her to Big Surf
AND
Maybe you just want your Mama to be around you all the time......so you take her with you
Maybe we did that on Wednesday
We had fun.....we got sunburnt.....we were in the scorching hot fireball sun for 8 hours
AND
Maybe you don't care that you can't wear a bra because the thought of anything but aloe touching your back makes you want to vomit
AND
Maybe it was worth it

 

 

 

 

 

 

 

 

Portland Oregon & Chromosome 15

My blue-eyed babe and I just returned from Portland, Oregon
We loved it there
We left on July 15, 2011.....Mr. Smitty and my 11th wedding anniversary
Don't worry....he is stuck with me forever so we will have many more to celebrate
Why did we go to this lovely land of green?
Chromosome 15
Ours happens to be "mutated"
We have Marfan Syndrome
Cali and I went to meet some Marfan peeps and share some love
We did what we set out to do
My lovely little blue-eyed dolphin met friends I am sure she will have forever.
I met Mamas who share the same fears, frustrations, and happiness I do
AND
A Marfan community who understand what it is like "to be me" if you will
It was great to walk into the hotel, and have it feel like home
Cali got to experience the Oregon Zoo & OMSI with her instant BFF's
I was able to listen to world renowned Dr.'s and share experiences with my peeps
I am really shy so next time I hope to meet even more lovely friends
When Calista and I weren't hanging out and learning all about our mutated chromosome's....
We got to explore Oregon
AND
While I didn't take pictures inside the conference (I didn't want people to think I was a stalker)
I made up for it by taking over 400 pictures exploring Oregon....don't worry I won't post them all

 

 

 

We love you Oregon.....

AND

I love my girl and her Chromosome 15, mutated or not....